Useful links
The following
links are provided for your information. They are not an exhaustive
list. They
are organised under the following headings, click a heading to jump
to that section
1.
Education (also see our page on Learning)
Portage: an early years home tuition programme
for disabled children
Network 81: a national parents network working for well
resourced inclusive education
Parents for Inclusion: Parents helping parents so their
disabled children can learn, make friends and have a voice in ordinary
schools and throughout life
NASEN (National association of special educational needs)
IPSEA (Independent Panel for Special Education Advice):
support parents of children with Special Educational Needs who are
having difficulties with Education services
Advisory Centre for Education: advises parents on state
education in England and Wales
FINE (Facilitating Inclusion in the North East): information, news and views about inclusive education in the North East
Pre school learning alliance
SKILL (National Bureau for Students with Disabilities)
Study Support is learning activity that takes place outside normal lessons which young people (aged 4-18) take part in voluntarily.
Early-Education:
a site providing factsheets for parents about early education
Alliance for Inclusive
Education (Allfie): an organisation committed to the full
inclusion of all children into mainstream education
Every Child Matters the Government's agenda to improve outcomes for all children and young people
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2. Play, Leisure and
Recreation (also see our page on Leisure)
Rebound Therapy: for use by everyone who is involved with rebound therapy and special needs trampolining
Whizzkidz: a charity supporting disabled children's
mobility
Action for Leisure: promoting play and leisure for disabled
children and adults
Kidsactive: Working towards a world in which all children's
right to play and their right to be included in their local play
communities are recognised and held to be of equal and inseparable
value
PHAB: clubs for disabled and non-disabled people to socialise
together
National association of toy and leisure libraries
Disability Challengers: play and leisure opportunities
for young people with any special needs
CBeebies Special
Educational Needs site: fun, games and information for
parents and children
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3. Counselling and
bereavement
Child bereavement trust: support following the death of a child
The compassionate friends: support around bereavement
Cruse bereavement care: support around bereavement
Winston's wish: helps bereaved children re-build
their lives after a family death
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4. Holidays and Treats (also see our page on Holidays)
Family holiday association: access to holidays and leisure for
families experiencing hardship or disadvantage
Make a wish foundation UK: granting wishes of
children aged 3-18 with life threatening illnesses
Starlight foundation: granting wishes to children who are seriously
or terminally ill
Contact a Family: factsheet about going on holiday with
your disabled child
Dial a Dream: granting wishes for sick children
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5. Equipment and adaptations
Disabled living foundation: helping disabled people
achieve greater mobility and independence
Abilitynet: access to Information Technology for disabled people
Whizzkidz: a charity supporting disabled children's mobility
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AWC: (association of wheelchair using children): training
and advice to improve the confidence and skills of children who
Use wheelchairs
1 Voice:
an organisation supporting children who use communication aids and
their families
Child Car Seats: new regulations from September 2006
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6. Parents and Carers (also see our page on Support for parents and carers)
Sunderland
Carers'
Centre
Nigel
Clare
Network
Trust: practical
support for families where their child's
life is limited or threatened
Bridge: a Sunderland based training and support
organisation for women
Gingerbread: support for lone parents
E-Parents: working to improve the lives of
parents and families by campaigning for a more family friendly society
Princess Royal Trust for Carers: a range of information for carers
as well as a discussion area where carers can chat to others
Face2Face a befriending service for parents
whose children have been recently diagnosed as having a disability:
Life knowledge park: a local website offering support to people with genetic conditions, and their families
Carers UK: Carers UK is the voice of carers.
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7. Finance (also see our page on Money)
Disability alliance:
experts on social security benefits for disabled people
Family Fund : financial support to families with
disabled children
Parents at work: supporting working parents
Benefits advice from the Department of Work and Pensions
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8. General (also see our Information Directory)
Asian People with Disabilities Alliance
Association for children with life threatening or terminal
conditions and their families (information and support for professionals)
Focus on Disability: a gateway to services in the UK
ERIC (Enuresis resource and information centre) information
about continence issues
National Childrens Bureau
DIAL UK: local disability information and advice services
Barnardo's national children's charity
Sure Start the government's programme for under 5s
Family Fund
financial assistance for families
Disability Rights Commission for the fight against inequality for disabled people
Government Disability web page national news and initiatives
Mencap: learning disability charitable organisation
Contact a Family: information, advice and support for families with
disabled children
BILD (British Institute for Learning Disability)
RADAR (royal association for disability and rehabilitation)
NSPCC (national society for the prevention of cruelty to children)
Talking
Point information for parents about speech, language and communication
difficulties in children
Signalong A
site for those working with children and young people with speech,
language and communication difficulties.
North East Ability:
a local guide to issues and services for disabled people
Children North
East Supporting children and families in our region
Equality North
East Support around issues of gender, sexuality, race,
ethnicity and more
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9. Conditions
ADD/ADHD
Sickle Cell Society
Brittle Bone Society
National Society for Epilepsy
Dyspraxia foundation
AFASIC (speech and language)
British Dyslexia Society
National Autistic Society
Scope (Cerebral Palsy)
Scope Early Years:
a site for families and their very young children with
cerebral palsy
Downs Syndrome association
Epilepsy Action
Reach: children with hand and arm difficulties
ASBAH (association for spina bifida and hydrocephalus)
Muscular Dystrophy Campaign
Cystic Fibrosis Trust
Jennifer Trust for Spinal Muscular Atrophy
UNIQUE Rare chromosome disorder support group
National Asthma Campaign
Climb: Children Living with Inherited Metabolic Diseases:
covering over 720 diseases
Spina Bifida
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10. Sensory Impairment
Dual sensory loss
Sense: supporting people who are deaf-blind
Deafblind UK
Hearing Impairment
Hiype Hiype! is the only website in the UK for hearing impaired people who are working, studying or are hoping to do one or the other in the near future!
Deafax Trust: Information Communication Technology for
deaf people
British Deaf Association
(RAD) Royal Association in aid of deaf people
SIGN- National Society for Mental Health and Deafness
National Deaf Childrens Society
RNID (Royal National Institute for the Deaf)
Visual Impairment
RNIB (Royal National Institute for the Blind)
Action for blind people
National Blind Childrens Society
Guide Dogs for the Blind
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11. Legal advice
Childrens Legal Centre: advice and information about law and policy
affecting young people
Childrens law centre: advice service on children's
rights and the law
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12. Health (also see our page on being healthy)
Young Minds: mental health support for young people
Eating disorders information and support
MIND: support around mental health
Sunderland Teaching Primary Care Trust
Great Ormond Street Childrens Hospital NHS trust: offers
a lot of health information, not just for families of children
being
admitted
to the hospital.
Patient UK: this is a website where you can search for health information, including information about a range of conditions, download leaflets and search for support groups.
Early Support Pack Information for parents
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13. Transport and mobility (see our own page on Transport)
Motability: ways of leasing or buying accessible
vehicles
NEXUS: local public transport
AWC (association of wheelchair using children): training and support
to increase independence
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14. Growing up and becoming an adult (see our own pages on growing up)
After 16 What's new? Resources to plan for the future
Circles Network Getting your child involved in planning their future
Trans-Active: Disabled and non-disabled young people working together to make choices about what to do after leaving school.
Valuing People Support Team: news and information
about improving the lives of learning disabled people
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15. Websites for children and young people (also see our pages for children and young people)
Under 11s
Being healthy - how to be healthy
cBBC - your life - stuff about everything
Childline - your worries
Staying safe on the net and web - safe surfing
The Hideout - are you living with domestic violence?
Traffic club - staying safe crossing the road
Pitara - Asian culture
K-Zone - fun learning
Children's Express - news stories by you for you
The Who Cares Trust - for children in care
Every schoolday counts - getting to school every day
Kidscape - bullying
Over 11s
Young people and mental health - stay sorted
After 16 What's new?- planning for life after school
Connexions- support
and advice for young
people about a range
of issues including
careers, relationships,
ambitions
etc
Need2know- a good general young people's site with information about... everything!
YDAP - youth drug and alcohol project
Being healthy - staying healthy
Childline - your worries
The Hideout - are you living with domestic violence?
T-Zone - learning
Pitara - Asian culture
Rights4Me - your rights
Sport Challenge - sport and the environment
Children's Express - news stories by you for you
SHOWT-ed - sexual health
City Equals - a self advocacy group for disabled young people in Sunderland
Y-Not - young people in care, leaving care and young parents in Sunderland
CJS On-line - the criminal justice system
Sunderland Youth Parliament - what's going on?
UK Youth Parliament - national information
Youth Offending Service - here in Sunderland
Advice guide - the Citizens Advice Bureau
General
Headstrong:
a site for children about having a brain tumour and understanding
treatment
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